Seems like a million years ago this all started with pain. A solid 7 months now and counting but cancer markers in the blood as well as size of the mass are all down! Now sadly doesn’t mean I am out of the woods yet, just means we are getting it under control. Did another round of chemo this past Monday full dose this time and no radiation. Feeling better ish compared to full weekly radiation but still fairly puny as chemo has side effects and one of the meds side effects is joint and muscle pain. Tylenol and Advil do very little, I have stronger meds but sadly nutrition wise, not a good idea to be knocked out. This week we visit City of Hope to ensure we are on a good path, not too concerned but first big trip and weary about the pain mainly. What a journey!
Tag: need sleep
So here we are, nearly midnight on week 5. So the rundown of what I have had thus far is: 5 Chemo Treatments (1 reduced 20% due to low white blood count) 29 Radiation Treatment (2 missed due to port placement) 2 Hydration Treatments 1 Port installed for easy treatment setup 1 Feeding Tube Installed for Ease of Nutrition. Crazy really. Just all so quickly done. Just like one day its “So treatment….” then “So feeding tube…” then “So this port thing will save your veins” – so 2 surgical procedures which even now is still something I’m getting used to – the port alone is weird because it’s under the skin and that’s just … weird! The feeding tube you can at least see and know its there, Lilly says the tube is soft, so its Lilly approved. I think we are finally getting nutrition under control, I am
Day one was going to be at last I knew just Chemo. Radiation had a snag last I knew and something was holding it up but that would change. I got there early after a rough night with an anxious Lilly I think picking up on Daddy & Mommy being anxious, its Chemo, you hear stories of vomiting and general sucky activities. So the Brown house was quiet, but a little girl kept asking about why the train was so loud when people were sleeping, what the neighbors were doing up and letting me know I was going to be okay and holding my hand. Sleep didn’t come for me till around 3ish, and the alarm was 6:45 am – so not a ton of sleep leading in, but we got up, we got ready – my breakfast choice of the day via feeding tube: Vanilla (it’s always vanilla lol).
So after months of trying to sort out my back, we have an answer. It’s not my back directly, but it does really hurt. After continuing to complain to docs about my throat and the inability to swallow and PT really just kicking my butt and leaving me in more pain, GP’s PA sent me to a GI, GI said “Well it’s in your throat… I can’t see in, so we will do a scope.” We did a scope, in which he did a biopsy of a “blockage” in my throat, so for one, score – I wasn’t crazy, I couldn’t swallow for a real reason – but he also ordered a follow-up of a CT scan to see how big. That was the weekend before last, and the CT scan gal said: “It’ll be done today, it was ordered stat.” So apparently he wanted it quick. This past Monday
Ball dropped. So in the first time in all my professional career I find myself with a project that has been completely nearly ruined by my health. Never before have I have a prolonged health issue set like this to where I can’t even think. It’s Sunday but the customer decided to call the company I’m doing the work for and give the likely final coming to Jesus talk. They aren’t happy. I have tried my best to meet the customer’s demands and desires, but when you can sometimes not even find the right work word in conversation, to even do completely straight forward code has become insanely difficult. I wish I knew more PHP developers to work a deal, get help, have someone else do it. Just been a really rough couple of months in which on top of it all, I’m just really getting depressed about things. No progress, Monday